Pray for Graham to be able to eat!

Please pray for Graham to eat today. They are going to let me try and breastfeed. If he doesn't eat they are going to put in a feeding tube.

"Like newborn babies, long for the pure milk of the word, so that by it you may grow in respect to salvation, if you have tasted the kindness of The Lord." 1 Peter 2:2-3

Praying he longs for breast milk today and the Word when he is older!

Sunday Update

The day started well with removing the catheter and one of his chest tubes, and the oxygen. They also took him off a few meds and he is not doing well without one of them. His heart rate is high and he is jittery. They are having to give him some of that med again. He is not wanting to eat and he is also getting a blood transfusion.

Overall we are still heading in the right direction, but slowly and with a few bumps.

Thankful for a few visits from friends today!

Give us this day our daily bread

That is what the Spirit prompted me to pray when my eyes opened this morning. "Lord, give us this day our daily bread. Give us what we need to make it through today." We are taking things one day at a time. Graham is doing better today than yesterday. He is having more urine output, the swelling in his chest is down, and he is doing well with the medicines and pace maker. His heart is still out of rhythm (he has JET) which will correct itself in a few days. They are keeping him really cold to help his heart. His little fingers and toes are freezing! They took the bandage off his incision today so I thought I would post another picture. (Sorry if the pictures bother you but most people are interested!)

Matt and I stayed at the Ronald McDonald house last night. Graham still wasn't eating so we let Matt's mom stay with Graham in the hospital. But speaking of eating... the best news of the day... GRAHAM DRANK FROM A BOTTLE!!!!! Graham has been cleared to eat, but they wanted to start off with pedialyte. We offered him the bottle of pedialyte and he took it eagerly! Despite my best efforts and prayers, Graham was still refusing the bottle at home. But he drank an ounce of the pedialyte and probably would have drank more if we let him. I am sooo thankful and relieved. I cannot get to him to breastfeed until the drainage tubes in his chest come out and I didn't want to have to do a feeding tube. PRAISE THE LORD! He is an on time God. When Graham needed to take a bottle, he did.

Not quite where we want to be

They had to start using the temporary pace maker on Graham last night. Because there is so much swelling in the heart it is not communicating well and needs help pacing. They stopped the pace maker mid-morning but Graham's heart is continuing to beat too fast and off rhythm because of swelling. The docs say it takes time to correct itself and they have him on several medications to help. We will be here longer than they first thought. He is also not urinating as much as they would like even though they are giving him Lasix. Praying for wisdom for the doctors, for all the meds to be dispensed correctly and do their job, and for good pain management.

Family photo from earlier this week.

Graham sleeping in dad's arms before surgery. An answer to prayer!

Graham right after surgery, still on the ventilator.

Off the ventilator and back to the paci!

 

So far so good

The surgery went well and Graham is off the ventilator. We have so many things to be thankful for. Graham slept in Matt's arms this morning until they took him at 8:15. They moved him to the PICU around 2 and we spoke with the surgeon and then got to see Graham. The hole in his heart was the size of a quarter which is quite large considering his heart is about the size of his little fist. He came off the ventilator in no time and is doing well.

Thank you for all the prayers, texts, calls, and Facebook comments. We have felt very loved and supported. We are praising the Lord for his provision!

Because He lives I can face tomorrow.

Many have asked what time the surgery is and if we need anything. We have to be at the hospital at 6:00am and surgery will probably start around 7:30am. We mostly need your prayers... texts, calls, facebook messages / likes, and visits are nice too. If you are praying, let us know! If you have a scripture for us, please send it! Thank you for all the support. We know that the Lord is good and He will see us through.

"Because He lives, I can face tomorrow. Because He lives all fear is gone. Because I know He holds the future and life is worth the living just because He lives."

Some Recent Pictures

5 Months Old

Laughing with daddy

Easter outfit and bunny from Grandmoma (Laney)

He's bound to love the river as much as grandaddy.

Onesie from Great Grandma Hallie

 Teething!

Cousin Hayes "reading" to Graham

First walk in short sleeves and no socks! 

That little chest will be forever changed this week.