5 days of bliss and then...

Well the twins were born, two days later we came home, and three days later Graham went to the hospital. It has been a crazy 3 weeks but I wanted to finally get something on the blog.  Graham started coughing on Friday and by Sunday evening his breathing was concerning enough that Matt and I called 911. Matt went to the hospital with Graham and I stayed home with the twins. Graham ended up being put on a ventilator and admitted to the ICU. By Wednesday the Wake Med doctor wanted to transfer Graham to UNC. While preparing Graham for transport he went into cardiac arrest. After getting him stable again they decided it was too risky to move him unless he was on ECMO (heart/lung machine). It was then decided that Graham would be transferred to Duke because they are one of the few hospitals in the nation that have a portable ECMO. So Duke came to get him and he has been in the PCICU (Pediatric Cardiac Intensive Care Unit) since then. 

Graham had two respiratory viruses (Rhino and Adno) and apparently has a congenital lung condition called malacia which means he has floppy air ways, plus his less than perfect heart. This has made for a very sick boy. He was on ECMO for 4 days and is still on the ventilator. He made some progress and 3 days ago they tried to take him off the ventilator but he wasn't able to breathe well enough on his own. He has taken several steps backwards since then. 

The twins and I (Liz) and my mom have been staying in a hotel near the hospital. Matt has been getting rides home in the evening then going to work and getting rides to the hospital after work. 

We continue to pray that God will heal Graham quickly and completely and that He will sustain our family during this time. We have been humbled and overwhelmed by the love and support we have received from friends, family, and church family. We are so grateful for all the gifts, visits, encouragement, and prayers.