Graham went to see the ophthalmologist recently, a follow-up appointment that was scheduled when he first went in May. The doc didn't have anything new to say about Graham's nystagmus. She thanked me for sending her some videos of his eyes that she used in a training conference. Apparently everyone thought Graham was really cute and they were very excited to see a vertical nystagmus because it is less common than a horizontal nystagmus. Although, Graham's eyes bounce both ways at times. The ophthalmologist has never had a patient with spinal stenosis and a vertical nystagmas and so she is very interested to see if the nystagmus clears up after surgery. She nor the neurosurgeon really know if it will, but we are hopeful.
Graham also had an evaluation with the Children's Developmental Services Agency (CDSA) last week. I was worried that Graham might not be in a good mood b/c it was during his morning nap. But he actually went back to sleep at 7am when he woke and I nursed him and slept til 8:45, so he was ready to eat and play for the 9am appointment! He was very cooperative. Praise the Lord. Our CDSA case worker and a physical therapist came for the evaluation. They determined that he is developmental where a 5-6 month should be. They recommended starting him in physical therapy and also with a developmental therapist, which something through their own program to help with speech and other things. Hopefully we will have paperwork rolling and be ready to start some therapy after Graham is recovered from his surgery.
Spine surgery is on Friday, I will post some details and prayer requests later. Graham has a possible ear infection so we have him on antibiotics, we are hoping this will not interfere with surgery.
Thanks for the updates. Praying for y'all so much this week. I'm so glad to hear that Graham was in good spirits for the developmental evaluation. I see Graham is famous in the ophthalmologist circle. Well, he's famous around these parts, too, and we're praying for a wonderful outcome from his surgery that will have the doctors (and everyone) really talking! He is one special little guy. Much love.
ReplyDeleteOphthalmology is just as important for newborn's, as it is for anyone else. A baby needs to develop properly, and if there is something wrong with their eyes, then it will be harder to fix when they aren't as flexible to change. One of my neighbors had the same thing that you are taking about, and she is still able to drive. I don't know how severe it is, but she functions just fine. http://www.advancedvisioncare.com
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