Early this morning the doctors decided Graham should get a feeding tube because he still isn't eating much. They wanted somebody from ENT (ear, nose and throat) to come examine him first. We waited all day with a very fussy baby. The ENT guy came at 9pm and basically said that he didn't think he could offer anything helpful. I have been very frustrated and impatient today. Why did our doctor think the ENT doctor could help and make us wait all day to see him?
Graham finally got a feeding tube that goes in through his nose at 9:30pm. Mom and I stayed in the room for it and we shouldn't have. There was lots of gagging and crying. We all nearly threw up. But now he is sleeping and getting 2 ounces of breast milk over the next hour. We are praying that the milk will not upset his digestive system and will make him be a happy boy. He really needs nutrition to recover from the surgery.
The doctors think he may have acid reflux that is causing him to not to want to eat. He cries because he is hungry and I put him to the breast and he drinks for a couple minutes and then comes off crying. They started him on a stronger acid reflux medicine but it will take a couple of days to start working.
Graham's heart is doing great! He just needs to resume eating and we can go home.
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