Slow Progress

Graham nursed for about 3 minutes a couple times between Friday night and Saturday morning. Then around noon today he nursed for 8 minutes! I am holding him more upright to nurse and working hard for burps. The next feeding Graham didn't nurse at all. It is tricky trying to time nursing, tube feeding, and pumping. They resumed giving Graham lasix because he is retaining too much fluid and that makes it hard to breathe and therefore hard to nurse. I don't think they should have stopped the lasix for 2 days, but anyway.

Also, ENT came back yesterday to scope Graham's throat. They basically said that they didn't see any need to but Graham's main doctor (a cardiologist) was insisting. They said I could refuse it but I didn't think the doctor would consider any other problems until he was satisfied that his throat was not the problem. I left the room in tears and they scoped him. And there was nothing wrong. Sigh.

Matt is feeling better and joined us at the hospital today. Please pray for Graham to eat well. Also pray that if there is some medical reason that Graham is not eating that the doctors would be willing to look for and find it. Today is day 11 in the hospital and I am ready to go home!

Thankful for a few smiles in between the the tears!

 

Grandmama Laney

 

Grandma Miller

 

Matt wearing a mask just to be safe. (You can see the feeding tube in his nose.)